How It Likes to Live with Psoriasis

Pain, Feeling of Isolation and Depression…

“That’s when I went to a new doctor, and she told me it was psoriasis. When there are dry patches on the soles of my feet, I can’t wear soled shoes,” she explains. “I can only wear flip flops or no shoes at all, because if I do put socks and shoes on, it becomes really painful when my feet swell. Taking off socks is like peeling off a bandage, and the patches are painfully itchy but you can’t scratch.People are not educated about psoriasis, so when they’d see my hands they’d be hesitant because they think it’s contagious,” she says. “I got to a point where I didn’t leave my house for eight months except for when I had my doctor’s appointments. That depression hit me hard.”

A Blow to Self Esteem, Confidence and Social Skills…

“When I was diagnosed in college, it was a serious blow to my vanity. I was young and eager to taste all the freedoms of life on campus, but my unsightly elbows and knuckles altered my direction. I grew cautious in romance, lived in long sleeves, and spent a lot of my waking hours at night with friends, watching obscure films and talking over endless cups of coffee. Intellectuals didn’t spend time preening and buffing and tanning; our bodies were beside the point.”

When Psoriasis Could Cost the Job…

“It was almost 20 years ago when my manager called me into his office, but I remember it like it was yesterday. He asked me to close the door. He told me that some of my coworkers had expressed that my psoriasis was “unsightly” and that I needed to do a better job of looking more presentable. It was like a punch in the gut. Did they think I could control my psoriasis just because it offended them?

According to measurements at my dermatologist’s office, I was, in their words, “more than 100 percent covered” based on the number of palm-sized areas of coverage. My scalp was covered and the flakes covered my shoulders, my chair and the floor around me. My back was so severely covered that my skin barely looked human. The slightest move would cause my back to crack and bleed. I wore long-sleeve shirts and long pants every day so that nobody would have to see my arms and legs.”

Thanks to the FDA…

“Treatments I tried over a 12-year period failed to work well enough to allow me to stop cyclosporine completely. Then last summer a new biologic injectable medication called Tremfya (guselkumab) gained U.S. Food and Drug Administration approval, and my doctor and insurance company allowed me to try it. It improved the psoriasis enough to where I could almost stop using cyclosporine.

….Today, though, I can say my skin looks and feels clearer than at any time in recent memory.”

Facing Psoriasis since Childhood…

“I have had psoriasis since I was 3. It was continuous throughout childhood but stopped after a particularly nasty flare up when I started using sunbeds. I suppose it kind of went ‘in to remission’ as no sign of it for six years. I had a stressful year followed by tonsillitis and I am covered again. It’s been since around mid-December and I just can’t cope. It’s covering my whole face, back, arms, chest, hands, with guttate all over my legs.”

And What to Learn From These Stories

These personal experiences must have given you an idea how it likes to live with psoriasis. If you are one of those people, seek medical assistance to ease your symptoms.

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